Meneire's Disease part 2

   After trying different medications & receiving some relief in my ear, but still having vertigo at least twice a week, falling & near falls (family members caught me before going down) my ENT (Ear, Nose & Throat specialist) informed me that the Meneire's was not uncontrolled if I was still having vertigo twice a week.  That was a shock & a bit of a let down for me. 

  He then informed me that I am down to one more medication to try before having to move to injections into my ear & proceeded to explain it to me.  I think I turned a couple colors of white.  I hope I never come to that.

  As of now, the medication is working.  Thank God!!!!  The ringing in my ears, can not be fixed.  But the vertigo is less, still happens for time to time.  I have sprained my ankle big time & trying to recover from that.  It was sprained from rolling it, not a dizzy spell & passing out.   Now in PT for that, hoping for no surgery.


  If what I offer here is relevant to you in any way, please consider donating. As I tend to my family (disabled hubby and homeschooled kids) I write in my free time. No knitting here but I love Taco Bell now and then and your donations help keep the spicy food coming. Every donation is appreciated!!!

Donations are not tax deductible.

Meneire's Disease

After over a year with dealing with vertigo, finally have more information on what is going on.

  After multiple doctor visits, physical therapy & vision therapy (which all did help), I was finally diagnosis with Meneire's disease.  
  If you wish to know more about Meneire's Disease, google it.  I will like to share just my point of view  of living with it. 

  I had mix emotions on being diagnosed with Meneire's Disease.  First was a relief to know what was going on.  Then sad to know there is no cure, just managing it.   I'm only in the first stage of it.  And I really don't want to go to any of the other stages if it's going to get worst as it goes.   

  Grateful that I have a really good support team be hind me during this.   When it's a bad day for me, I can just focus on me & what I need.  My team also steps up to take care of me & whatever I'm not able to do that day.  

  It has been hard dealing with the limits that I have now.  After being able to do whatever, whenever I wanted, to gotta plan out everything.  With low energy, bad memory, balance comes & goes, headaches & ear pain, nausea,  vision gets weird at times, anxiety levels are higher just to name a few that I have been dealing with for over a year ever day.  

  Trying different meds to help deal with some of this stuff & then the side effects of the meds.  Just trying to find the new balance of things.  And that can very from day to day.  

  The new plan is to slow life way down, pick carefully what I really want to do each day.  Also plan each day down time to rest or nap.  Avoid loud places is a must.   Loud places & noises really hurt my ears, it's like a sharp ice pick going into my ear.  Not to mention the effect of cold on the ear.  OUCH!!!!!   But I need the cold cause of how hot I can get.  Thankfully I got some warm ear coverings for Christmas. I can keep my ear covered, it helps muffles loud noises & it's not a hat that keeps my head hot & heat in.    

  It's little things that help make Meneire's Disease more manageable.  Watching my salt intake helps to with pain in the ear.   If you think you may have Meneire's Disease, please talk to your primary doctor.   

  If what I offer here is relevant to you in any way, please consider donating. As I tend to my family (disabled hubby and homeschooled kids) I write in my free time. No knitting here but I love Taco Bell now and then and your donations help keep the spicy food coming. Every donation is appreciated!!!

Donations are not tax deductible.

Started another platform for my blog posts.   Visit it & see if it works easier for you.   It should be the same information as this one.   I made some updates to this one, hopefully it is more user friendly.

 Here's a link to the other blog post:
http://unencumberedliving.home.blog

If what I offer here is relevant to you in any way, please consider donating. As I tend to my family (disabled hubby and homeschooled kids) I write in my free time. No knitting here but I love Taco Bell now and then and your donations help keep the spicy food coming. Every donation is appreciated!!!

Donations are not tax deductible.